Rachel weighed 15 pounds 12 oz today. She has an ear infection...so that stinks. But otherwise, our most imunocompromised child is healthy. We applied for a handicapped placard tag today. It will get progressively harder to carry her everywhere, so we might as well get one now. It will make parking much easier.
Her MRI showed that she still is consistant with Dandy Walker Varient. Sutures werent noticed, but the doctor said that it would become evident that her brain is under stress before the problems occurred (meaning her skull would start to look odd and lumpy etc) so most likely, her bones wont fuse for a long time, and it will take her brain to grow for it to spread her skull. In all likelyhood, her brain/head growth will probably be just as slow as the rest of her growth and developement. My husband brought up a good point earlier. Progeria patients progress very rapidly....Rachel seems like the exact opposite. Every single thing about her takes a very long time. Even her fingernails...and her hair....and her developement. So...it looks like her brain has developed ridges consitant with growth, but the overall size is still the same. End of story about that........
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1 comment:
So sorry to hear about Rachel's ear infection, but I'm glad that none of her sutures have closed yet! That's good news!
Yes, a handicapped placard does make things much easier when transporting a disabled child....we have one for Emma, because she still can't sit up or walk, and we don't know if she ever will.
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